Registered Charity Number 1058284
Registered Company Number 3148360
Insulin Dependent Diabetes Trust
Report and Accounts
31 December 2005
Insulin Dependent Diabetes Trust,
Tel 01604 622838 e-mail enquiries@iddtinternational.org
Website www.iddtinternational.org
The Report of the Trustees
The Trustees present their annual report
and accounts for the year ended 31st December 2005.
The Board of Trustees is satisfied with the
performance of the charity during the year and the position at 31st
December 2005 and consider that the charity is in a strong position to continue
its activities during the coming year, and the charity's assets are adequate to
fulfil its obligations.
The particular ways in which objectives
have been achieved are described below.
The
Objectives of the Charity and how it is attempting to achieve the objectives
The charity is constituted as a company
limited by guarantee and is therefore governed by a memorandum and articles of
association. The directors of the company are also the Trustees of the charity.
The restrictions in the charity's
activities imposed by its memorandum and articles are restricted funds which
can only be used in furtherance of the charity objectives.
The charity's objectives and principle
activities continue to be that of making the day to day life of people with
diabetes easier.
The particular way in which these objectives
are achieved are detailed below:
·
the
need to maintain a choice of insulin treatment
·
raising
awareness of the adverse effects that some people experience when using GM
synthetic insulins
·
maintaining
supplies of animal insulins indefinitely for people, both now and in the
future, who cannot tolerate GM insulins.
Organisation
A board of 7 trustees administer the charity, covering policy,
membership and finance.
Under the memoranda and articles of the
Trust, the charity has the power to make any investment that the Trustees see
fit.
The charity has no financial links with any
other charities or organisations. IDDT does not accept any financial assistance
or sponsorship from pharmaceutical companies. There are groups in other
countries with similar objectives that are affiliated to the Trust.
IDDT is an affiliate of the James Lind
Alliance, a new organisation investigating ways that patients and clinicians
can identify gaps in research that are important to both.
Year 2005 was another active
year for IDDT with the focus on reaching the wider population of people with
diabetes, the healthcare professionals treating them and parents and children
of people with diabetes.
In October 2005 IDDT held its Annual
Conference, 'Your Voice Counts' with a maximum attendance. It was particularly
pleasing that delegates included non-members of IDDT, people from countries
outside the
Widening IDDT's message
IDDT intended to continue the planned advertising
campaign in local newspapers to inform people of the possible adverse effects
of GM, synthetic insulins and of their choice of insulin treatment. However,
the shortages of supplies of animal insulins manufactured by CP/Wockhardt UK
continued throughout 2005, therefore IDDT had no alternative but to delay this
form of advertising until Wockhardt stocks returned to normal.
As diabetes is increasingly being managed
in primary care, the decision was taken to try to put forward the IDDT aims and
concerns to primary care nurses and to GPs and so increased the advertising to
these health professionals through their professional journals. This increased
the numbers of practice nurses expressing a wish to receive information and
publications from the Trust to 900 by the end of the year. Many nurses have
requested and continue to request multiple copies of IDDT leaflets for their
patients.
Nursing in Practice Conference
In 2005 for the first time and encouraged
by the response the advertising campaign from nurses, IDDT had a stand at the
Nursing in Practice conference at the NEC in
Reaching Teachers
In 2005 IDDT developed an Information Pack
for teachers and also one for parents of children with diabetes. The Trust
worked with Rapor to produce a pull-out supplement for a teacher's magazine
that goes to 26,000 primary schools. The supplement provided basic facts about
childhood diabetes and mainly concentrated on recognition of hypoglycaemia in
children with diabetes in the classroom and how to deal with it. The supplement
was very well received by schools and teachers with many requests for the
Information Packs.
Increasing the staff
During 2004 it became clear that if IDDT
was to continue to grow and build on the
increase in membership and activities of the Trust, then the level of
staff would have to be increase to a second full time member of staff. This
decision was carried out in early 2006 and has enabled the Trust to be more
efficient and effective.
IDDT-International Website
The revision of the IDDT-International
website in June 2004 2004. There has been an increase in visits to the website
and in people wishing to join IDDT.
ePolitix is a website used
extensively as an information source by politicians and civil servants. In 2002
IDDT launched a microsite on the site to raise awareness amongst politicians of
the issues that affect people with diabetes and in particular the need for
patients to be involved in every aspect of their healthcare and decision
making. The Trustees decided to
continue with this microsite for 2005 as a source of information to support the
lobbying campaign.
International activities
IDDT has continued to expand the
international links with people and groups in countries around the world. This
became particularly important in the
During 2005 Novo Nordisk also announced
discontinuation of pork insulins in all other countries except the
The Threat and Discontinuation of Pork
Insulin by Novo Nordisk
The final decision by Novo Nordisk about
the discontinuation of their pork insulins did not take place in 2005 as
promised. In fact, the decision was made in January 2006. So during 2005 IDDT
continued to lobby against Novo Nordisk's discontinuation as it would leave
people in the
However, during 2005 Novo Nordisk did
discontinue of some of their GM human insulin product range and recommended
people to change to insulin analogues.
The Trust deplores this decision by Novo Nordisk and has serious
concerns about this unnecessary change of insulin for many people and this
further reduction in the choice of insulins, especially as the long-term safety
of insulin analogues is unknown and they have the potential for carcinogenic
effects.
The Safety of Analogue insulins - Should
Patients be concerned?
This is the title of an Supplement
published by IDDT and widely circulated to patients, patient organisations and
health departments in various countries. The Supplement contains an article by
Professor Ernst Chantelau and Jenny Hirst questioning the therapeutic benefits
of insulin analogues against their potential carcinogenicity. The article is in two versions - one for
non-medical readers and one for medical readers. The purpose of the Supplement
is to provide patients with a more informed choice of treatment and to give
greater publicity to the concerns about insulin analogues and their unknown
long-term safety.
Lobbying and Campaigning
The lobbying campaign that started in 2003
has continued throughout 2004 and 2005. The campaign centres on:
·
the need to
maintain a choice of all insulin treatment
·
raising awareness
of the adverse effects that some people suffer when using GM 'human' insulins
·
maintaining
supplies of animal insulins indefinitely for people who cannot tolerate GM
insulins
·
the vulnerability
of people who need animal insulin if there is only one supplier in the
Our members have
worked tirelessly to seek the help of their MPs and MEPs. This resulted in over
30 Parliamentary Questions being asked throughout 2005 and a meeting with the
then Health Minister, Jane Kennedy. Following this meeting Jane Kennedy made a
statement confirming that the Dept of Health fully accepts that some people
need animal insulin and that it should continue to be available. This was a
major step forward in the campaign and
IDDT has built on this in the following campaign activities. The Trust
is totally committed to safeguarding the health and wellbeing of the estimated
30,000 people in the
In August 2005 IDDT's parliamentary
lobbyist, Mr James Pawsey retired and Ranelagh International was appointed to
this role. The Trustees would like to thank both Mr Pawsey and Ranelagh for
their commitment to our cause and without whom we would not have raised our
profile in the political arena or achieved meetings with the Ministers of
Health.
The Trustees wish also to express thanks to
the many MPs and Members of the House of Lords who have been extremely
supportive throughout the year. They also express their sincere gratitude to
members of the Trust for their unfailing support and the time and effort they
are spending on this campaign. The Trustees also wish to thank Wockhardt
IDDT - International continues to
develop greater communication and mutual support between the IDDT groups and
individual people with diabetes in different countries. This has increased with
the continued systematic discontinuation of animal insulins in countries around
the world.
2005 saw an increase in the number of
people contacting IDDT from other countries many of whom were desperately searching for sources of pork
insulin and information about personal importation from the
The Trust continues to deplore the
discontinuation of animal insulins in countries around the world as it denies
people the treatment they need at an affordable price. The Trust also continues
to be concerned that people are not given the fully informed choice of insulin treatment, to which they are
entitled. This convinces the Trustees of the continued necessity for
IDDT-International to provide factually correct information to people with
diabetes.
IDDT-International continues to enable people to recognise that the
adverse effects they experience with synthetic insulins are shared by many
other people. Providing information and support wherever people live continues
to be a major role and IDDT encourages and supports them to campaign for
recognition of the adverse effects that some people experience and for easily
accessible and affordable natural animal insulins.
IDDT publications
The Trust continues to publish a quarterly Newsletter which is
distributed to members, to over 400
diabetes specialist nurses and 900 practice nurses with a special interest in
diabetes. During 2005 IDDT continued to develop a database of people who
contact IDDT for information that has resulted in a continued increase in
membership.
The Trust has increased the number of leaflets that are available on
various aspects of diabetes and redesigned them into small booklets for easier
display in GP and hospital waiting rooms. The demand for IDDT leaflets from
people with diabetes, their relatives and from health professionals has
markedly increased throughout the year.
IDDT continues to provide the Newsletter in large print and on tape for visually
impaired and blind people. The Trustees again wish to thank to Eileen and
Richard Probyn-Skinner for being the readers for the tape version.
IDDT Research Grants
The Trust has continued to advertise the availability of research grants
to be awarded in line with the aims of the charity - to studies that look into
ways of making the day to day life with diabetes easier for people.
Legacy income is variable but it was agreed at the AGM 2005 that the
amount available for each grant should be increased from £10,000 to up to
£30,000. Many of the applications received are not in line with the Trust's
policy and therefore have not been accepted.
In 2005, the Trust approved grants in the following areas:
·
whether insulin analogues have mitogenic activity ie
increased cell multiplication.
·
Evaluation of the diagnosis, treatment and follow up
by healthcare providers in Ramallah where there are very few poorly equipped
and staffed diabetic clinics.
·
The relationship between the maternal blood glucose,
their constituents of colostrum and the baby's source of energy in women with
and without diabetes.
·
An extension of the grant to evaluate the NSF for
diabetes in primary care.
Collection of in-date, unwanted insulin - in 2005 the Trust collected over
25,000mls of unwanted insulin for people unable to afford insulin - a massive
2.5 million units of insulin! We responded quickly to tsunami appeal followed
by regular supplies of insulin to help children and adults with diabetes in
Sponsor a child at the Dream Trust - the numbers of people supporting
this scheme to help with the insulin and medical costs of children at Dream
Trust in
Financial Affairs
IDDT is very grateful for the continued generosity of the members in
making donations and especially to the increasing number of people who make
regular donations through their bank. The Trustees also wish to record their
gratitude to the donors of legacies and donations in memory of loved ones.
Their kindness in helping other people with diabetes is very much
appreciated.
In conclusion
The Trustees would like to express their thanks for the continuing
support and help of IDDT members and their families which provides
encouragement to Trustees to continue with the aims and objectives of IDDT. It
also reflects the needs of people living with diabetes to be represented by a
patient/carer based charity that understands their needs and remains
independent and uninfluenced by outside financial influences. The Trustees
reaffirm their commitment and determination to try to ensure that people with
diabetes and their families have the informed choices of treatment and the
access to them that they deserve and need.
The organisational structure and how decisions are made
The organisational structure of IDDT is a Board of Trustees who are
involved in the decision making for the charity. There are two paid members of
staff who carry out the decisions the decisions of the Trustees. Minor day to
day decisions are taken by the Co-Chairs in consultation with the Treasurer,
where necessary. Modern technology enables consultations to be made quickly and
easily. Major decisions on future policies are taken to the AGM for approval of
members.
Method of election of members of the Board of Trustees
This is carried out at the AGM in accordance with the Memorandum and
Articles of the charity. The whole membership is invited to nominate members
for election to the Board of Trustees. There is a rotation system 3 yearly and
if there has been an absence of new nominations, the AGM has proposed and
approved that the Board be re-elected.
Relationships with other groups, charities and individuals
The Trust is a totally independent organisation.
Details of related parties and transactions with related parties
Apart from monthly editorials fees paid to the Co-Chairman, as agreed
with the Charity Commission, the Trustees receive only out of pocket expenses.
Transactions and Financial position
The financial accounts are set out on the profit and loss balance sheet
and the notes to the accounts. The financial statements have been prepared
implementing the Statement of Recommended Practice for Accounting and Reporting
by Charities by the Charity Commission for England and Wales [effective October
2000] and in accordance with the Financial reporting Standard for Smaller
Entities [effective June 2002]. The Trustees consider the financial performance
by the charity during the year has been satisfactory.
The Statement of Financial Activities show net outgoing resources for
the year of a revenue nature of £296,772 and net realised incoming of a capital
nature of £568,341, making net overall realised outgoing resources of £271,565.
The total reserves at the year end after reserving for unrealised losses of nil
stand at £2,027,677.
Specific changes in fixed assets of each of the funds
The Board of Trustees is satisfied that the charity's assets are
available and adequate to fulfil its obligations.
Policies on reserves, investment policies and investment performance
The Trustees have resolved to establish reserves to provide for future
activities, and the Trustees have wide powers of investment.
Within those powers, a statement of investment principles has been set
out as below. The policy on reserves is that existing assets are retained to
produce income, income which is wholly utilised to support existing activities.
There is no intention in the long term to either increase or reduce the capital
held. The policy is justified in that it is necessary to preserve income at the
present levels in order to maintain the activities of the charity.
Share Capital
The company is limited by guarantee and therefore has no share capital.
Effectiveness of fundraising policies
The charity relies on grant aid from the donors identified in the
accounts and whose support is valued. There are no other fundraising
activities.
The major risks to which the charity is exposed and reviews and systems
mitigate
The Trustees cannot find any major risks to which the charity is exposed
each financial year when preparing and updating the strategic plan, in
particular those relating to the operations and finances of the charity.
Legal Status
The charity is an incorporated charity governed by memorandum and
articles. There are no restrictions in the governing document on the operation
of the charity or on its investment powers, other than those imposed by general
charity law.
The members of the Board of Trustees of the Charity during the year
ended 31st December 2005 were:
Co- Chairman
Jenny Hirst and Dr Matthew Kiln
Treasurer
Sue Morris
Medical Adviser
Dr Laurence Gerlis
Trustees
Carol Baker
Larrane Ingram
Veronica
Readman
All the directors of the company are also Trustees of the charity, and
their responsibilities include all the responsibilities under the Companies Act
and of trustees under the charities Act.
The members of the Board of Trustees of the Charity at the date the
report and accounts were approved were:
Co- Chairman
Jenny Hirst and Dr Matthew Kiln
Treasurer
Sue Morris
Medical Adviser
Dr Laurence Gerlis
Trustees
Carol Baker
Larrane Ingram
Veronica
Readman
Bankers
Barclays Bank plc
Leicester
LE87 2BB
Auditors
Paul Slater & Co
Chartered Accountants
1 Washington Street
Kingsthorpe
Northampton
Northants
NN2 6NL
Statement of Directors' and Trustees' Responsibilities
Charity Law and the Companies Act require the Board to prepare financial
statements for each financial year which give a true and fair view of affairs
of the charity as at the end of the financial years and of surplus or deficit
of the charity. In preparing those financial statements the Board is required
to:
·
select suitable
accounting policies and then apply them consistently;
·
make judgements and
estimates that are reasonable and prudent:
·
prepare financial
statements on the ongoing concern basis unless it is inappropriate to presumes
that the charity will continue in business:
·
state where
applicable accounting standards and statements of recommended practice have
been followed, subject to any material departures disclosed and explained in
the financial statements.
The Trustees are also responsible for maintaining proper accounting
records which disclose with reasonable accuracy at any time the financial
position of the charity nd which are sufficient to show and explain the
charity's transactions and enable them to ensure that the financial statements
comply with the Companies Act 1985. They are also responsible for safeguarding
the assets of the charity and hence for taking reasonable steps for the
prevention and detection of fraud and other irregularities.
This report was approved by the Board of Trustees on 25 July 2006
Mrs S Morris
Director and Trustee