Registered Charity Number 1058284
Registered Company Number 3148360
Insulin Dependent Diabetes Trust
Report and Accounts
Insulin
Dependent Diabetes Trust,
Tel
01604 622838 e-mail enquiries@iddtinternational.org
Website
www.iddtinternational.org
Organisation
A board of 7 trustees administer the charity, covering policy,
membership and finance.
Under
the memoranda and articles of the Trust, the charity has the power to make any
investment that the Trustees see fit.
The
charity has no financial links with any other charities or organisations. IDDT
does not accept any financial assistance or sponsorship from pharmaceutical
companies. There are groups in other countries with similar objectives that are
affiliated to the Trust.
IDDT
is an affiliate of the James Lind Alliance, an organisation investigating ways
that patients and clinicians can identify gaps in research that are important
to both.
Year
2006
was
another active year for IDDT with the focus remaining on reaching people with
diabetes and parents and children living with diabetes. IDDT has also tried to
reach greater numbers of health professionals involved in diabetes to try to
ensure that they are aware that the choice of pork insulin will continue to be
available after the discontinuation of Novo Nordisk pork insulin at the end of
2007.
In
October 2006 IDDT held its Annual Conference, 'Make Your Voice Count' with a maximum attendance. It was
particularly pleasing that delegates included non-members of IDDT, people from
countries outside the
Widening
IDDT's message
There
were shortages of supplies of Wockhardt animal insulins during the early part
of 2006. This delayed IDDT's planned advertising campaign in local newspapers
to inform people of the possible adverse effects of synthetic insulins and of
their choice of insulin treatment.
Throughout
2006 there was sustained advertising of IDDT's aims and the continued
availability of animal insulins to primary care nurses and to GPs through their
professional journals. This significantly increased the numbers of practice
nurses expressing a wish to receive information and publications from the Trust
to 1800 by the end of the year. Many nurses request multiple copies of IDDT
leaflets for their patients and several thousand leaflets were sent out in
addition to the quarterly Newsletters.
Nursing
in Practice Conference
In
2006 IDDT had stands at the Nursing in Practice conferences in
Reaching
Teachers
The
Information Packs developed in 2005 for teachers and for parents of children
with diabetes have been very popular. A children's department has been set up
and a quarterly Parents' Bulletin is produced by Beverley Freeman to
acknowledge the particular needs of families living with diabetes.
Staff
levels
During
2006 IDDT employed two full time members of staff to handle the increasing
membership and work load. By the end of 2006, it became clear that it would be
advisable to have additional clerical assistance when necessary, if IDDT is to
continue to grow and build on the increased membership and activities of the
Trust. This decision was carried out in early 2007 and has enabled the Trust to
be more efficient and effective.
IDDT-International
Website
The
IDDT-International website has continued to be updated and developed and is the
largest source of new members.
ePolitix is a website used extensively as an
information source by politicians and civil servants. IDDT has continued to
maintain a microsite with ePolitix to support the lobbying campaign and raise
awareness amongst politicians of the issues that affect people with diabetes,
especially those requiring animal insulin.
International
affiliates
IDDT
has strengthened the international links with people and groups in countries
around the world. IDDT Canada has successfully campaigned with the Society of
Diabetics Rights and in April 2006, Health
During
2006 Novo Nordisk discontinued pork
insulins in all other countries except the
The
Discontinuation of Pork Insulin by Novo Nordisk
In
January 2006 Novo Nordisk announced the discontinuation of pork insulin in the
The
Trust continues to deplore the decision chosen by Novo Nordisk to reduce the
choice of insulins to insulin analogues and has serious concerns about the lack
of evidence of the long-term safety of insulin analogues and their potential
for carcinogenic effects.
The
Safety of Analogue insulins - Should Patients be concerned?
This
Supplement by Professor Ernst Chantelau and Jenny Hirst published by IDDT in
2005 questions the therapeutic benefits of insulin analogues against their
potential carcinogenicity. In order to try to ensure that people needing
insulin have a truly informed choice of insulin and are aware of the potential
risks, the Supplement is circulated to all who contact IDDT.
Lobbying
and Campaigning
The
lobbying campaign that started in 2003 continued through 2006. The main thrust
of the campaign remained the same:
·
the need to maintain a choice of all
insulin treatment
·
raising awareness of the adverse
effects that some people suffer when using GM 'human' insulins
·
maintaining supplies of animal insulins
indefinitely for people who cannot tolerate GM insulins
·
the vulnerability of people who need
animal insulin if there is only one supplier in the
Following
Novo Nordisk's statement of their intention to discontinue all
pork
insulins and eventually all 'human' insulins in favour of insulin analogues,
the campaign also focussed on:
·
the need for evidence of safety of
insulin analogues,
·
evidence of their benefit,
·
the cost effectiveness to the NHS
·
the lack of choice for people unable to
tolerate them.
Our
members have worked tirelessly to seek the help of their MPs. This resulted in
over 30 Parliamentary Questions being asked throughout 2006, many letters from
MPs to Ministers and a presentation to a meeting with the All Party
Parliamentary Group for Diabetes [APPG]. The APPG agreed to support our
campaign and wrote to Andy Burnham MP, then Minister of Health, requesting that
the National Institute for Clinical Excellence [NICE] assesses all insulins and
issues guidance on their use. In December 2006, the Minister agreed to support
this but subsequently reneged upon this agreement requiring increased pressure
from IDDT in 2007.
The
Trustees would like to thank lobbyists, Ranelagh International, for their help
and advice in raising IDDT's profile in the political arena and achieving
meetings with the APPG and the Dept of Health. The Trustees also wish to
express thanks to the many MPs and Members of the House of Lords who have been
extremely supportive throughout the year. Above all, the Trustees express their
sincere gratitude to members of the Trust for their unfailing support and the
time and effort they are spending on the campaign.
The
Trustees thank Wockhardt UK / CP Pharmaceuticals for their commitment to the
ongoing supply of bovine and porcine insulin in vials and cartridges and reiterate that
campaign for a second supplier in the UK is not a reflection on the quality of
Wockhardt insulins but is based on the belief that one supplier of animal
insulin is an unsafe and vulnerable position for the 30,000 people who need
it.
IDDT -
International continues
to develop greater communication and mutual support between the IDDT groups and
individual people with diabetes in different countries. This has increased with
the continued systematic discontinuation of animal insulins in countries around
the world.
2006
saw a continued increase in the number of people contacting IDDT from other
countries many of whom were desperately searching for sources of pork insulin
and information about personal importation from the
The
Trust continues to deplore the discontinuation of animal insulins in countries
around the world as it denies people the treatment they need at an affordable
price and is concerned that people are not given the fully informed choice of insulin treatment, to which they are
entitled. Through the website, IDDT-International enables people to recognise
that the adverse effects they experience with synthetic insulins are shared
by
many other people.
Providing information and support wherever people live continues to be
a major role and IDDT encourages and supports them to campaign for recognition
of the adverse effects that some people experience and for easily accessible and affordable natural animal insulins.
IDDT publications
The Trust continues to publish a quarterly Newsletter distributed to members, to diabetes specialist nurses and
practice nurses with a special interest in diabetes.
The Trust has increased the number of leaflets that are available on
various aspects of diabetes and redesigned them into small booklets for easier
display in GP and hospital waiting rooms. They are also produced in large
print. The demand for IDDT leaflets from people with diabetes, their relatives
and from health professionals has markedly increased throughout the year.
IDDT continues to provide the Newsletter in large print and on tape for visually
impaired and blind people. The Trustees again wish to thank Eileen and Richard
Probyn-Skinner for being the readers for the tape version.
IDDT Research Grants
The Trust has continued to advertise the availability of research
grants to be awarded in line with the aims of the charity and increased the
maximum grants to £30,000 as a result of the decision taken at the last AGM.
Many of the applications received are not in line with the Trust's
policy and therefore have not been accepted. In 2006, the Trust approved:
·
on the basis of a
report of the initial work the grant was extended to investigate whether
insulin analogues have mitogenic activity ie increased cell multiplication.
·
evaluation of the
diagnosis, treatment and follow up by healthcare providers in Ramallah.
Collection
of in-date, unwanted insulin - in 2006 the Trust collected over
20,000mls of unwanted, in-date insulin for people unable to afford it - a
massive 2.0 million units of insulin! We also collected blood glucose test
strips, new blood glucose meters and thousands of syringes and lancets. The
supplies were sent to
Sponsor
a child at the Dream Trust - the number of
people supporting this scheme to help with the insulin and medical costs of
children at Dream Trust in
Financial Affairs
IDDT is very grateful for the continued generosity of the members in
making donations and especially to the increasing number of people who make
regular donations through their bank. The Trustees also wish to record their
gratitude to the donors of legacies and donations in memory of loved ones.
Their kindness in helping other people with diabetes is very much
appreciated.
In conclusion
The Trustees would like to express their thanks for the continuing
support and help of IDDT members and their families which provides
encouragement to Trustees to continue with the aims and objectives of IDDT.
This support reflects the needs of people living with diabetes to be
represented by a patient/carer based charity that understands their needs and
remains independent and uninfluenced by outside financial influences.
The Trustees reaffirm their commitment and determination to try to
ensure that people with diabetes and their families have the informed choices
of treatment and the access to them that they deserve and need.
The organisational structure and how decisions are
made
The organisational structure of IDDT is a Board of Trustees who are
involved in the decision making for the charity. There are two paid members of
staff who carry out the decisions of the Trustees. Minor day to day decisions
are taken by the Co-Chairs in consultation with the Treasurer, where necessary.
Modern technology enables consultations to be made quickly and easily. Major
decisions on future policies are taken to the AGM for approval of members.
Method of election of members of the Board of
Trustees
This is carried out at the AGM in accordance with the Memorandum and
Articles of the charity. The whole membership is invited to nominate members
for election to the Board of Trustees. There is a rotation system 3 yearly and
if there has been an absence of new nominations, the AGM has proposed and
approved that the Board be re-elected.
Relationships with other groups, charities and
individuals
The Trust is a totally independent organisation.
Details of related parties and transactions with
related parties
Apart from monthly editorial fees paid to the Co-Chairman, as agreed
with the Charity Commission, the Trustees receive only out of pocket expenses.
Transactions and Financial position
The financial accounts are set out on the profit and loss balance sheet
and the notes to the accounts. The financial statements have been prepared
implementing the Statement of Recommended Practice for Accounting and Reporting
by Charities by the Charity Commission for England and Wales [effective October
2000] and in accordance with the Financial reporting Standard for Smaller
Entities [effective June 2002]. The Trustees consider the financial performance
by the charity during the year has been satisfactory.
The Statement of Financial Activities show net outgoing resources for
the year of a revenue nature of £259,596 and net realised incoming of a capital
nature of £485,968 making net overall realised outgoing resources of £226,372.
The total reserves at the year end after reserving for unrealised losses of nil
stand at £2,213,977.
Specific changes in fixed assets of each of the
funds
The Board of Trustees is satisfied that the charity's assets are
available and adequate to fulfil its obligations.
Policies on reserves, investment policies and
investment performance
The Trustees have resolved to establish reserves to provide for future
activities, and the Trustees have wide powers of investment.
Within those powers, a statement of investment principles has been set
out as below. The policy on reserves is that existing assets are retained to
produce income, income which is wholly utilised to support existing activities.
There is no intention in the long term to either increase or reduce the capital
held. The policy is justified in that it is necessary to preserve income at the
present levels in order to maintain the activities of the charity.
Share Capital
The company is limited by guarantee and therefore has no share capital.
Effectiveness of fundraising policies
The charity relies on grant aid from the donors identified in the accounts
and whose support is valued. There are no other fundraising activities.
The major risks to which the charity is exposed and
reviews and systems mitigate
The Trustees cannot find any major risks to which the charity is
exposed each financial year when preparing and updating the strategic plan, in
particular those relating to the operations and finances of the charity.
Legal Status
The charity is an incorporated charity governed by memorandum and
articles. There are no restrictions in the governing document on the operation
of the charity or on its investment powers, other than those imposed by general
charity law.
By order of the Trustees.
Mrs J Hirst (Joint Chairperson)
The members of the Board of
Trustees of the Charity during the year ended
Co- Chairman Jenny Hirst
Dr Matthew Kiln
Treasurer
Medical Adviser Dr Laurence Gerlis
Trustees Carol Baker
Larrane Ingram
Veronica
Readman
All the directors of the company are also Trustees of the charity, and
their responsibilities include all the responsibilities under the Companies Act
and of trustees under the Charities Act.
The members of the Board of Trustees of the Charity at the date the
report and accounts were approved were:
Co- Chairman
Dr Matthew Kiln
Treasurer
Medical Adviser Dr Laurence Gerlis
Trustees Carol Baker
Larrane Ingram
Veronica
Readman
Bankers
Barclays Bank plc
LE87 2BB
Auditors
Paul Slater & Co
Chartered Accountants
Kingsthorpe
Northants
NN2 6NL
Statement of Directors' and Trustees'
Responsibilities
Charity Law and the Companies Act require the Board to prepare
financial statements for each financial year which give a true and fair view of
affairs of the charity as at the end of the financial years and of surplus or
deficit of the charity. In preparing those financial statements the Board is
required to:
·
select suitable accounting policies and then apply
them consistently;
·
make judgements and estimates that are reasonable
and prudent:
·
prepare financial statements on the ongoing concern
basis unless it is inappropriate to presumes that the charity will continue in
business:
·
state where applicable accounting standards and
statements of recommended practice have been followed, subject to any material
departures disclosed and explained in the financial statements.
The Trustees are also responsible for maintaining proper accounting
records which disclose with reasonable accuracy at any time the financial
position of the charity nd which are sufficient to show and explain the
charity's transactions and enable them to ensure that the financial statements
comply with the Companies Act 1985. They are also responsible for safeguarding
the assets of the charity and hence for taking reasonable steps for the
prevention and detection of fraud and other irregularities.
This report was approved by the Board of Trustees on
Mrs S Morris
Director and Trustee