MBE Is Bolt From The Blue For Charity Chair

Jenny Hirst MBE

Jenny Hirst, who has run the very successful charity, the Independent Diabetes Trust (IDDT) for over 20 years, was this week made an MBE in the Queen’s Birthday Honours.

Jenny, who has worked tirelessly for people with diabetes since her daughter was diagnosed with Type 1 diabetes nearly 40 years ago, first as a Trustee for the British Diabetic Association (now Diabetes UK) and then for IDDT, was amazed to hear about her Award.

Click here to read more.

‘20 Years of Independence’

IDDT formed in 1994 and published its first Newsletter in April of that year, so this year we celebrate our achievements over the last 20 years with the theme of ‘20 Years of Independence’. This is an achievement in itself. It is 20 years without accepting pharmaceutical industry or other funding which could be seen as biasing our position and the information we provide.

Click here to read more.

Holiday Tips

Holiday Tips

Whether going on holiday abroad or in this country, it may be the first time you have travelled since your diabetes or your child’s diabetes was diagnosed. We hope that this information will give you a few practical tips and help you to plan ahead for your holiday.

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Introducing IDDT

We are an organisation for people living with diabetes run by people living with diabetes. We recognise that when one person in a family lives with diabetes, this affects other family members and we offer support to partners and parents. We raise awareness of important issues for people with diabetes and provide information in non-medical language.read less

A charity based in the UK listening to people with diabetes and their carers and supporting their needs. The Trust is run entirely by voluntary donations and we do not accept funding from the pharmaceutical industry in order to remain uninfluenced and independent.

The Insulin Dependent Diabetes Trust (IDDT) is a registered charity and was formed in 1994. We are concerned with listening to the needs of people who live with diabetes, understanding those needs and doing our utmost to offer help and support. We not only want to help those who actually have diabetes but also their carers – the husbands, wives, partners and parents, indeed, all of us who ‘live with diabetes’. We recognise that when one person in a family has diabetes, all other family members are affected to a greater or lesser extent and they all have views and needs which may be different from the person with diabetes, but nevertheless are important.

The Trust was set up to look at some of the day to day difficulties of living with diabetes, the worries, fears and concerns that perhaps we don’t talk about at the hospital clinic- the ones that many of us experience and understand because we actually live with diabetes. As a charity, IDDT has a Board of Trustees and all our Trustees either have diabetes or have family members with diabetes. So we all know first hand that while diabetes doesn’t rule our lives, it is an important part of them. It needs care and attention, it can be a nuisance and it is not without it’s problems!

Olly’s £20 Challenge

Olly's £20 Challenge

Oliver Jelley, known as ‘Olly’ and his brother Ben helped raise £500 by completing a 14-mile run from Market Harborough to Northampton. The brothers ran along the Brampton Valley Way on Saturday, June 7, to raise money for the InDependent Diabetes Trust’s £20 Challenge.

Click here to read more.

Now Available:
June’s Newsletter, Parents’ Bulletin
and Type 2 & You

Newsletters

Anniversary Conference

‘20 Years of Independence’

Saturday, October 18th 2014
Kettering Park Hotel and Spa
Kettering
Northamptonshire
NN15 6XT

Click here for the programme

Sharing Your Health Records

Your personal and private medical records will be shared and information extracted from them unless you choose to opt out. See the facts.

Click here to read more.

Latest News

Ramadan – Fasting and Diabetes

Ramadan

Ramadan is based on the ninth month of the lunar calendar, so this year it is expected that the fast of Ramadan will commence on Saturday June 28th or Sunday June 29th 2014 and last for 29 or 30 days.

Click here to read more.

Note: Diabetes UK has also produced factsheets to download about fasting safely during Ramadan in Urdu, Bengali, Arabic and English.

In 1 week, 60 hospital patients with diabetes develop preventable complications – National Audit

Note from IDDT: our Hospital Passport is designed to help people with diabetes when they have to go into hospital. It gives hospital staff important information about you and your diabetes. It should be hung on the end of your bed, so make sure the hospital staff looking after you read the information.
Launch of Passport for Diabetes in Care Settings
Click Here to read the report

Launch of Passport for Diabetes in Care Settings

The charity, the InDependent Diabetes Trust (The Trust), in partnership with the Institute of Diabetes for Older People (IDOP) and the English Community Care Association (ECCA), announce the launch of their new ‘Passport’ for people with diabetes in care settings.

The Passport is intended to be used in settings such as residential homes to provide carers with vital information about their clients’ diabetes needs.
Launch of Passport for Diabetes in Care Settings
Click Here to read more

DVLA issues new driving guidelines

On June 21st 2012 the DVLA issued new guidelines aimed at making it easier for drivers with diabetes treated with insulin to understand the new driving rules to comply with the European Directive introduced in 2011.

Click here to read more.

LGV drivers unaware of the need to test if they are taking tablets

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Driving and hypoglycaemia – what are doctors being advised to do?

The Association of British Clinical Diabetologists [ABCD] has recognised that the EU Directive on standards of driving in diabetes will have a significant impact not only on drivers with diabetes but also on the doctors who complete medical reports for the DVLA. The ABCD has clarified their response to the Directive and this basically advises doctors on their actions with their patients on the most important change – hypoglycaemia. [Practical Diabetes Vol. 29 No1] It seems sensible that people with diabetes know what advice their doctors are receiving, so below are the key points in the ABCD recommendations to doctors.

Click here to continue reading

First ever mandatory care standards to improve the level of care of children and young people with diabetes

Announced in early April 2012, every child and young person with diabetes in England can expect an improvement in their level of care as a landmark funding agreement for paediatric diabetes services comes in to force.

The ‘Best Practice Tariff for Paediatric Diabetes’ sets out 13 mandatory care standardsfor paediatric diabetes service teams to meet. Providers who can prove they meet these levels of care will qualify for greater funding. Local services unable to achieve these standards will be supported to improve but face having their funding withdrawn if unable to reach the required level by April 2013.

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Useful links

It is important that people have a fully informed choice of insulin so that they can choose the type of insulin and the regime that suits them and their lifestyle.

links

Insulin Choices – The Evidence
Animal insulins are available in the UK
Pork insulin available in Australia
Replacement pork insulin available in
Canada

Use of Pork Insulin in Pumps
Reviews and Reports

The IDDT Shop

IDDT can now take online orders for books via the IDDT Shop. We currently have 3 highly rated books for sale – Collins Carb Counter, Arthur Teuscher’s ‘Insulin – A Voice For Choice’ and My Life with Diabetes – 61 years of Carb Counting, by Tony Huzzey. All 3 are available at very competitive prices – and with free delivery*!

We also have a stock of cool boxes for carrying insulin…

*Unfortunately IDDT can only deliver books free of charge within the UK.

The IDDT Shop
Click Here to visit the IDDT Shop

Animal insulins continue to be available – statement from Wockhardt UK

IDDT formed to maintain supplies of animal insulins, not only so that this choice of natural insulin remains available for everyone, but especially for the people who have adverse reactions to the synthetic human and/or analogue insulins. We never forget that this need still exists and we know that many animal insulin users worry about the continued availability of the animal insulin they need. Many are often wrongly told that animal insulins are no longer available.

Click here to read more.

Content

HbA1c Converter

This is just to remind you that the HbA1c measurements have changed. Well, they were supposed to change everywhere but predictably this doesn't appear to be the case. Some people and some articles are still using the old measurements so it is important that we are aware of both.

Here is a table showing the current DCCT measurements, the proposed new IFCC measurements, and the average blood glucose measurements you can expect to be associated with each particular level of HbA1c

HbA1c (DCCT) Current measurement (%)

HbA1c (IFCC) Measurement from June 2011 (mmol/mol)

Average blood glucose level for this HbA1c, mmol/L

6

42

7.0 (range 5.5-8.5)

7

53

8.6 (range 6.8-10.3)

8

64

10.2 (range 8.1-12.1)

9

75

11.8 (range 9.4-13.9)

10

86

13.4 (range 10.7-15.7)

11

97

14.9 (range 12.0-17.5)

12

108

16.5 (range 13.3-19.3)

13

119

18.6 (range 14.6-21.1)